Install
Newborn Screening Saves Lives Reauthorization Act of 2025
To amend the Public Health Service Act to reauthorize certain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes.
- Introduced
- Committee
- Passed House
- Passed Senate
- To President
- Became law
Summary
Newborn Screening Saves Lives Reauthorization Act of 2025
This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases.
Among its changes, the bill reauthorizes and makes mandatory
- the Hunter Kelly Research Program at the National Institutes of Health, and
- national surveillance activities conducted by the Centers for Disease Control and Prevention.
The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.
Summary by the Congressional Research Service, Library of Congress.
Actions
- Sep 10, 2025 Forwarded by Subcommittee to Full Committee by Voice Vote.
- Sep 10, 2025 Subcommittee Consideration and Mark-up Session Held
- Sep 10, 2025 Referred to the Subcommittee on Health.
- Jul 23, 2025 Referred to the House Committee on Energy and Commerce.
- Jul 23, 2025 Introduced in House
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