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News
Next-gen CAR T-cell therapy for MG soon moving into human trials
11+ hour, 23+ min ago (646+ words) Treatment acts like a wanted poster in autoimmune diseases, targeting proteins Written by Marisa Horak, MS | July 21, 2026 TPST-4003, Tempest Therapeutics’ next-generation CAR T-cell therapy for autoimmune diseases such as myasthenia gravis (MG), will soon be tested in people for the…...
Training family to show up when MG flares strike
1+ day, 9+ hour ago (296+ words) Vanetta Fenton, an MG patient advocate, shares how open family conversations can help loved ones recognize symptoms and respond during flares or crises. Because my daughter is so young. I’ve always made sure that I have equipped her with knowing…...
How to tune your communication to speed up MG care
1+ day, 10+ hour ago (189+ words) Kristina Kelly, a patient advocate, shares how using clear, fact-based communication may help patients express urgent symptoms and get the care they need sooner. When I communicate a critical need to my provider that I need to be seen sooner…...
Guest Voice: Taking back control of my life from myasthenia gravis
6+ day, 7+ hour ago (519+ words) I've realized it’s normal to miss the person I once was Written by Maria Daniela Guzmán Gordon | July 17, 2026 Sixteen years ago, when I was diagnosed with myasthenia gravis (MG) at the age of 12, I was very active. I played sports,…...
Repeated treatment cycles help manage symptoms in gMG study
5+ day, 5+ hour ago (730+ words) Rystiggo was generally well tolerated during repeated use over about 2 years Written by Steve Bryson, PhD | July 16, 2026 Repeated cycles of Rystiggo (rozanolixizumab-noli) were generally well tolerated and consistently eased symptoms over a median study duration of about two years among…...
How people respond to my MG, and what I wish they’d do instead
1+ week, 7+ hour ago (377+ words) I don't need doubt or pity; I just want to be heard and believed Written by Sarah Bendiff | July 16, 2026 The irony is that even if someone were pretending to be sick to get attention, they would still deserve compassion rather…...
Financial strain weighs heavily on people with gMG and caregivers
1+ week, 8+ hour ago (801+ words) Survey highlights financial, planning, and physical burdens in daily life Written by Steve Bryson, PhD | July 14, 2026 Financial strain and disruptions in planning and independence were among the most relevant burdens reported by people living with generalized myasthenia gravis (gMG) and…...
Diabetes may worsen MG by activating disease-causing B-cells
1+ week, 5+ day ago (671+ words) Written by Michela Luciano, PhD | July 9, 2026 Diabetes, a condition marked by chronically high blood sugar (glucose) levels, may worsen symptoms in people with myasthenia gravis (MG) by promoting the activation of B-cells, the immune cells that produce the disease-causing antibodies,…...
What courage looks like in daily life with myasthenia gravis
2+ week, 10+ hour ago (445+ words) We never know what each day will bring, but we begin it anyway Written by Mark Harrington | July 8, 2026 It’s sweltering here in Texas. The air quality is abysmal, and a sense of “blah” seems to be everywhere. For somebody like…...
Global clinical trial launches for self-given, long-acting gMG drug
1+ week, 6+ day ago (613+ words) Written by Andrea Lobo | July 8, 2026 Dianthus Therapeutics has launched a global, late-stage clinical trial to evaluate the safety and effectiveness of its self-administered injection therapy claseprubart versus a placebo in people with generalized myasthenia gravis (gMG). The Phase 3 study, dubbed…...