Please confirm you are human
This browser or connection looks automated. Press and continuously hold the control for 3 seconds to enable Google-hosted web results and, when separately allowed, AI-assisted answers.
A successful check enables 100 search requests. Interactive access does not authorize scraping, systematic collection, or reuse of search output.
News
MRI of facial nerve may detect motor neuron damage in SMA
2+ day, 15+ hour ago (453+ words) Thinner facial nerves correlate with lower physical function Written by Margarida Maia, PhD | Aug. 21, 2026 MRI measurements of the facial nerve, which controls the muscles used for facial expression, may offer a simple way to detect damage to motor neurons — nerve…...
Newborn screening, early treatment show benefit in SMA type 1
4+ day, 16+ hour ago (727+ words) Babies in Turkey who were screened had better outcomes, study finds Written by Steve Bryson, PhD | Aug. 19, 2026 Infants diagnosed with spinal muscular atrophy (SMA) type 1 through newborn screening programs (NBS) and treated early with Spinraza (nusinersen) showed better survival, motor…...
I can't do anything on my own, but I can do much with others
1+ week, 2+ day ago (578+ words) Interdependence is necessary with SMA, and there's nothing wrong with that Written by Halsey Blocher | Aug. 14, 2026 I promise I’m not being negative or dramatic when I say I can’t do anything on my own, and I don’t lack confidence in…...
Children with SMA face higher risk of severe RSV, study finds
1+ week, 2+ day ago (681+ words) Researchers note need for 'targeted preventive strategies' for kids over 2 Written by Lila Levinson, PhD | Aug. 14, 2026 Children with spinal muscular atrophy (SMA) have a higher risk than their peers in the general population of developing severe respiratory syncytial virus (RSV)…...
A double rainbow, a flash flood, and memories of different kinds...
1+ week, 6+ day ago (610+ words) Like a sudden storm, our SMA assignment was intense but brief Written by Helen Baldwin | Aug. 12, 2026 Last Wednesday evening, a double rainbow popped up across the road. We’d had rain to some extent every afternoon and night. The rainbow provided…...
SMA webinar puts relationships, work and travel in the spotlight
1+ week, 4+ day ago (203+ words) Patient advocates will share lived experiences and practical perspectives Aug. 25 Written by Marisa Horak, MS | Aug. 12, 2026 In a few weeks, SMA News Today will host a free webinar exploring aspects of life with spinal muscular atrophy (SMA) that are rarely…...
Incomplete registry data limits value of SMA studies
1+ week, 6+ day ago (652+ words) Written by Marisa Horak, MS | Aug. 10, 2026 Registry studies can provide a valuable glimpse into how outcomes are evolving in rare diseases such as spinal muscular atrophy (SMA), but a lack of complete data can limit their usefulness, a study found....
Nerve function tests may help track SMA treatment results in babies
2+ week, 2+ day ago (854+ words) Testing could assess disease in presymptomic infants diagnosed via screening Written by Marisa Horak, MS | Aug. 7, 2026 In infants diagnosed via newborn screening with spinal muscular atrophy (SMA), measures of nerve function may be a useful way to quickly evaluate disease…...
Accessibility advocacy also entails fighting to protect our gains
2+ week, 5+ day ago (376+ words) While we push for a better world, we must also refuse to cede an inch Written by Sherry Toh | Aug. 6, 2026 Another day, another devastating headline in the realm of video games. The news isn’t surprising to me. The tech world…...
SMA protein loss affects nerve cells differently in worm study
2+ week, 4+ day ago (297+ words) Study found vulnerability varied across nerve cell types and even individual cells Written by Marisa Horak, MS | Aug. 5, 2026 Different types of nerve cells respond differently when activity of a gene linked to spinal muscular atrophy (SMA) is reduced — and responses…...